Sunday, February 26, 2017

Relying on faith in times of trials

Pastor Mark Buchanan once contemplated, "how much night can a day hold and still be called 'day'?" As a Christian there are times when I am reminded that I haven't fully put my trust in Christ. Those times are often when, as in my last post, I have been frustrated because of outside circumstances, mostly beyond my control. In those times, it feels as if there is far too much darkness in my days. I can sometimes (not often though) become the harbinger of negativity, which is a role I fundamentally despise. I was reminded of that today by my friend, Nancy, who like my wife, also suffers from RA. Additionally, putting negativity out there where others may feel its effect is something I clearly don't like doing, because as a fairly optimistic realist, I prefer to uplift.
And yet it happens. Because everyone needs to vent at times. I believe though, that when the venting takes over and becomes the majority of a persons reflections on life, that something is missing. In my case, what usually is missing is putting my trust in God--not, as my Pastor, Bryan Hurlbutt says, in his works--but instead, in his character.
Sadly, those of us who are believers tend to forget God in our times of great anguish, just as Job was reminded by his friend in Job 35:9-11:

Because of the multitude of oppressions they cry out; They cry for help because of the arm of the mighty. But no one says 'Where is God my maker, who gives songs in the night, who teaches us more than the beasts of the earth and makes us wiser than the birds of the heavens'? NASB

I am guilty of this. It's a learning curve, and I'm sorry that others have to feel the brunt of my ignorance. It makes me snarky and negative all in the interest of self-protection. It assuredly isn't my natural state, and the good Lord will help me through it. I've just got to remember that He's there for me. Trying to do it alone, through our own force of will is a fool's errand. That and remembering that it's never really as dark as it could be. There are people with a lot more trials than I have, and I grateful I have mine instead.
God is great. He will help us all through this. Rely on Him.

Wednesday, February 22, 2017

When frustrations mount

Ann was supposed to have an appointment with her Rheumatologist tomorrow. As per the previous post, she had been struggling with her legs. Now they are just weak--muscle atrophy, I believe. I was looking forward to her visit with her doctor as a prerequisite to getting some in-home physical therapy. Instead, she had a massive flare in her left arm (up to a 10 on the pain scale she says) and she called and canceled the appointment while I was at work. As her caregiver that frustrates me to no end. I wanted her to get walking better. She needs the help. I called and rescheduled it for her, but it's another six weeks out.
She is so heavy that if she ends up not being able to use her legs, there's no way I can help her in and out of a wheelchair to use the bathroom. And I can't be home full-time anyway, not and keep a roof over our heads. After her hospital stay last month, she had steadfastly determined that she wasn't going to go to the bariatric specialist for help with her weight via weigh-reduction surgery, even though they had provided a referral. I was hoping for the PT to get her healthy enough to walk, at least around the house, and then for her to consult with the bariatric specialists on how best to tackle the weight issue.
Instead, she is left with an uncertain and possibly grim future. Sometimes I'd just like to beat my head against the wall.
I have decided though, that beating my head will solve nothing, and allowing myself to be aggravated and frustrated won't help either. All I can do, is try and encourage, be there to pick up the pieces if and when they happen, and stay on top of my own health and happiness. And that's all really, that anyone who is a caregiver can reasonably expect.

Tuesday, February 7, 2017

Sunday, February 5, 2017

Just got this in my Facebook feed

This link has some helpful information in it for those with RA and their loved ones. Clickety-click.